Win this bitterly painful, moving but ultimately inspiring story about one girl’s battle against severe Myalgic Encephalomyelitis (M.E) in Care & Nursing Essential’s competition.
Jessica Taylor-Bearman shares her inner-most thoughts and real-time emotions – adapted from her diary growing up as a teenager in South-East England – as she experiences the terrifying discovery that, aged 15, instead of partying, studying and socialising, she would rapidly become bed-ridden, ultimately unable to move, speak, eat...
Despite the odds, Jessica never gave up. Her dream was to become an author, to be able to marry, leave the hospital, enjoy life.
In July her first book, A Girl Behind Dark Glasses, was published by Hashtag Press.
Supported by a hugely successful crowdfunding project, Jessica’s story also features in a film called Unrest by Jennifer Brea, a journalist and filmmaker from New York, which aims to raise awareness about severe M.E.
After winning a prize at the Sundance Film Festival earlier this year, the now Oscar-shortlisted film is now on general release in the UK, coinciding with a review of the controversial National Institute for Health and Care Excellence (NICE) guidelines into the diagnosis and management of the illness.
From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage schoolgirl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive.
Becoming an author, being able to raise awareness about the condition – also known as Chronic Fatigue Syndrome – is the only thing that kept Jessica going through her teenage years.
Using voice recognition software, which she calls ‘Bug’, Jessica was able to record her time in hospital, providing a raw, real-time honesty to the story that would be impossible to capture in hindsight.
M.E. is a systemic neuroimmune condition characterised by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system.
The effects of M.E. are devastating enough to leave 25% of patients housebound or bedbound. For moderate to severe patients, living with M.E. is like living with late-stage cancer, advanced stage AIDS, or congestive heart failure for decades. In many parts of the world, it is commonly called Chronic Fatigue Syndrome.
To be in with a chance of winning A Girl Behind Dark Glasses (£12.99, Hashtag Press) enter our competition here:
a Rafflecopter giveaway
*The administrator of this competition is Care and Nursing Essentials Magazine ("administrator"). By participating in the competition, each Entrant unconditionally accepts and agrees to comply with and abide by these Official Rules and the decisions of Administrator, which shall be final and binding in all respects. Administrator is responsible for the collection, submission or processing of Entries and the overall administration of the competition. Entrants should look solely to Administrator with any questions, comments or problems related to the Competition. Administrator may be reached by email at firstname.lastname@example.org during the Promotion Period.
* This giveaway will close at 12.00am, 17th September 2018.
* The prize is the A Girl Behind Dark Glasses book from Jessica Taylor-Bearman. The prize is non-transferable, non-refundable. There is no cash alternative.
* Open to UK residents aged 18 or over, excluding employees of the Administrator, the sponsor, their families and anyone else professionally connected with this promotion.
* There is one compulsory entry which requests that to enter the competition you answer a question based on ‘A Girl Behind Dark Glasses book’ information. Additional entries are available.
* The prize winner will be asked to provide their email address so that contact can be made to arrange prize delivery, and their name and county be published in the next issue of the magazine
* By entering the competition, you grant the Administrator permission to add your details to the mailing list, share your email address and any other personally identifiable information with the other competition Entities for the purpose of administration and prize fulfillment, including use in a publicly available Winners list.
* Entries will only be accepted as instructed and any entrant that does not complete the qualifying requirements will be disqualified
* The winner will be chosen using the random entry selector built into the widget.
* The winners will be informed by email within 5 days of the closing date, and must respond within 5 days to claim their prize. If there is no response within the 5 days and new winner will be drawn at random.
*This prize draw is governed by English law and the courts of England shall have exclusive jurisdiction over any dispute arising in connection with it.